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The Gerontologist 42:497-506 (2002)
© 2002 The Gerontological Society of America

Burden Among Family Caregivers of Persons With Alzheimer's Disease in Nursing Homes

Jane B. Tornatore, PhDa and Leslie A. Grant, PhDb

a Department of Health Services, VA Puget Sound Health Care System, Seattle, WA
b Department of Healthcare Management, Carlson School of Management, Minneapolis, MN

Correspondence: Jane B. Tornatore, PhD, Screen Inc., 8017H 8th Avenue South, Seattle, WA 98108. E-mail: j.tornatore{at}attbi.com.

Decision Editor: Laurence G. Branch, PhD

Purpose: This article examines family caregiver burden after placement of a relative with Alzheimer's disease or a related dementia in a nursing home. Design and Methods: A systems-oriented contextual approach was used to study burden in 276 family caregivers. Results: SAS PROC MIXED analysis showed burden to be associated with caregiver age, length of time involved in caregiving, custodial units, involvement in hands-on care, and expectations for care. Implications: The findings suggest that more services aimed at relieving caregiver burden after nursing home placement may be warranted, particularly so for caregivers who are older and for those who had a shorter length of involvement in direct caregiving before institutionalization.

Key Words: Dementia • Family caregiver • Stress • Nursing home • Special care unit




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