HOME HELP FEEDBACK SUBSCRIPTIONS ARCHIVE SEARCH TABLE OF CONTENTS		QUICK SEARCH:   [advanced] Author: Keyword(s): Year:  Vol:  Page:

This Article Full Text Full Text (PDF) Alert me when this article is cited Alert me if a correction is posted Services Similar articles in this journal Similar articles in PubMed Alert me to new issues of the journal Download to citation manager Citing Articles Citing Articles via HighWire Citing Articles via Google Scholar Google Scholar Articles by Whitlatch, C. J. Articles by Tucke, S. S. Search for Related Content PubMed PubMed Citation Articles by Whitlatch, C. J. Articles by Tucke, S. S.

Measuring the Values and Preferencesfor Everyday Care of Persons With Cognitive Impairment and Their Family Caregivers

Correspondence: Address correspondence to Carol J. Whitlatch, The Margaret Blenkner Research Institute, Benjamin Rose, 850 Euclid Avenue, Suite 1100, Cleveland, OH 44114. E-mail: cwhitlat{at}benrose.org or stucke{at}benrose.org

Purpose: This study describes the development and psychometric properties of a 24-item scale to be used in both research and practice settings that assesses the everyday care values and preferences of individuals with cognitive impairment and the perceptions of family caregivers about their relative's values and preferences for care. Design and Methods: The Values and Preferences Scale was developed on the basis of previous measures used with cognitively intact samples with additional items generated by the authors in consultation with an advisory committee of practitioners, researchers, family caregivers, and persons with cognitive impairment. Individuals with mild to moderate cognitive impairment and their family caregivers (n = 111) were interviewed for the study. Results: Results of a factor analysis determined that the Values and Preferences Scale can be divided into two domains or subscales for persons with cognitive impairment and their family caregivers (i.e., Environment–Social Network and Personal Autonomy). These domains were found to have good internal consistency for both the individuals and their caregivers (Cronbach's alphas ranged from.70 to.82). Evidence of their psychometric properties compared with measures of depression, quality of life, and involvement in decision making was also found. Implications: These findings suggest that persons with cognitive impairment are able to express values and preferences about care they currently receive or will need in the future. Further application and testing of the Values and Preferences Scale should prove useful to practitioners who assist those with cognitive impairment and their caregivers with daily care decisions and the development of care plans.

Key Words: Dementia • Decision making • Caregiving

This article has been cited by other articles:

				P. Housen, G. R. Shannon, B. Simon, M. O. Edelen, M. P. Cadogan, L. Sohn, M. Jones, J. L. Buchanan, and D. Saliba What the Resident Meant to Say: Use of Cognitive Interviewing Techniques to Develop Questionnaires for Nursing Home Residents Gerontologist, April 1, 2008; 48(2): 158 - 169. [Abstract] [Full Text] [PDF]

				M. D. Sebern and C. J. Whitlatch Dyadic Relationship Scale: A Measure of the Impact of the Provision and Receipt of Family Care Gerontologist, December 1, 2007; 47(6): 741 - 751. [Abstract] [Full Text] [PDF]

				H. L. Menne and C. J. Whitlatch Decision-Making Involvement of Individuals With Dementia Gerontologist, December 1, 2007; 47(6): 810 - 819. [Abstract] [Full Text] [PDF]

				N. L. Chappell, R. C. Reid, and J. A. Gish Staff-based measures of individualized care for persons with dementia in long-term care facilities Dementia, November 1, 2007; 6(4): 527 - 547. [Abstract] [PDF]

				D. O'Connor, A. Phinney, A. Smith, J. Small, B. Purves, J. Perry, E. Drance, M. Donnelly, H. Chaudhury, and L. Beattie Personhood in dementia care: Developing a research agenda for broadening the vision Dementia, February 1, 2007; 6(1): 121 - 142. [Abstract] [PDF]

				C. J. Whitlatch, K. Judge, S. H. Zarit, and E. Femia Dyadic intervention for family caregivers and care receivers in early-stage dementia. Gerontologist, October 1, 2006; 46(5): 688 - 694. [Abstract] [Full Text] [PDF]

				M. Downs, S. M.B. Ariss, E. Grant, J. Keady, S. Turner, M. Bryans, J. Wilcock, E. Levin, R. O'carroll, and S. Iliffe Family carers' accounts of general practice contacts for their relatives with early signs of dementia Dementia, August 1, 2006; 5(3): 353 - 373. [Abstract] [PDF]

				S. M.B. Ariss, E. Grant, M. Downs, B. Fernandez, R. Gallagher, D. Cherry, and M. Barclay Piloting a consumer-directed intervention to improve primary care for dementia in the UK Dementia, August 1, 2006; 5(3): 456 - 462. [PDF]